The Health Data Revolution
Improving Outcomes, Protecting Privacy

Summary

THE DR. LAWRENCE H. AND ROBERTA COHN FORUMS

THE HEALTH DATA REVOLUTION: Improving Outcomes, Protecting Privacy
Presented jointly with HuffPost

Tuesday, December 5, 2017

Will the next great medical insight come from a clinical trial, a laboratory study — or a database search? Today, health systems and insurers have access to a mountain of data about millions of Americans: what medications they take, their health history, even, in some cases, their genetics—plus an emerging body of mobile health data. Using “big data” techniques, doctors and researchers are already mining this data to deliver better care and to gain insights into the kind of hyper-specific questions that clinical trials and observational studies struggle to answer. The approach promises major, rapid-fire, highly-personalized discoveries. At the same time, with the specter of cyberattacks and hacks looming, the need for rugged privacy protection has never been greater. In this Forum, experts in healthcare data and privacy will discuss the potential for future discovery, practical steps to enable progress, and how information can be kept secure.

 

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Presented jointly with HuffPost

Background Articles

Image Credit: iStock: shulz

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  • The Forum Moderator

    Welcome everyone. We will be starting in about 15 minutes.

  • Bulat Idrisov

    Dear speakers,

    I am not sure if it would be covered specifically, but I would like to put it here just in case. Since Dr. Halamka co-authored a white paper on blockchain and EHR along with Ariel Ekblaw almost a year ago now, he probably be the best to take this question. Blockchain technologies now disrupting healthcare markets. Anything hot these days to look for on Electronic Health Records and/or insurance/payment markets with blockchain technologies? How specifically blockchain should be used on data storage: i.e., decentralized or centralized data storage solutions? How is blockchain connects to FHIR? Anything along those lines….

    Many thanks,
    Warm regards, Bulat Idrisov MD.

    • Alexander Peters, MD

      New article out in the Bulletin of the American College of Surgeons today on this

  • The Forum Moderator

    We will be starting in a few minutes.

  • @pass_blue

    Looking forward to it. Catherine Mullaly, MD

    • The Forum Moderator

      Thanks for joining us!

  • @pass_blue

    With CVS’ proposed $69 billion buy of Aetna, does this double down on patients’ erroneous expectations that for every disease there is a drug? is healthcare entering a new era where the **social determinants** of disease, the academic underpinnings, are being sidelines for profits and potentially coming population ill-health?

  • @pass_blue

    Here is a data and health outcomes question:
    With CVS’ proposed $69 billion buy of Aetna, does this double down on
    patients’ erroneous expectations that for every disease there is a drug?
    is healthcare entering a new era where attention to **social determinants** of
    disease, the academic underpinnings, is being sidelined by data for profits with the
    potentially unintended population outcome of ill-health?

  • The Forum Moderator

    Thank you for the questions. I am passing them along to be asked.

  • Bulat Idrisov

    Will Dr. Samal be able to share more data on her recent paper and application she mentioned? Maybe a link to the paper or to GitHub? Thanks, Bulat

  • @pass_blue

    Here is a data and health outcomes question from Dr. Catherine Mullaly of the CUNY Graduate Center digital publication PassBlue:
    With CVS’ proposed $69 billion buy of Aetna, does this double down on
    patients’ erroneous expectations that for every disease there is a drug?
    is healthcare entering a new era where attention to **social determinants** of
    disease, the academic underpinnings, is being sidelined by data for profits with the
    potentially unintended population outcome of ill-health? Thank you.

  • Lingyun Su

    China is going through a major healthcare reform just as we are going through a big leap-forward both in economy and in big data. There hasn’t been an exact counterpart to HIPPA yet. What would the panelists recommend as China starts to build something similar?

  • Jacqueline Proctor

    Thank you Deven. As an adult who tracks my mom’s visits to her physician, I can say that the port is great for me. Not so much for her. The end user will always be paramount.
    As Deputy Commissioner of a State Unit on Aging, we are aware of this every day.

  • Yudha Eri Saputra

    I believe in Big Data of healthcare. It’s mystery, isn’t it? What opportunity could be dragged by that Terra’s of health data..

    Maybe need AI to help physicians to give them insight to take decisions.

    Precision medicine, machine learning. Hey, where’s Dr.Bercy? He’s the expert.

    It is crucial to implement the whole system, not just the technology. The people, the S.O.P, the environment. Every must be ready before implementing the future science.

    Question:
    And in Indonesia itself, the regulation is not ready, while the stream off health tech coming like a tsunami. How should we respond? (for all speakers)

  • Lingyun Su

    Thank you Deven. I’d so much want to follow up with you on the lessons China can learn.

  • The Forum Moderator

    Our event is wrapping up. Thank you all for joining us!

    • Yudha Eri Saputra

      ah yes. Maybe if there’s next topic, how’s UHC related to health IT. Thank you

  • The Forum Moderator

    The on-demand video will be posted here after the event. Tomorrow, the video will be posted on YouTube.

  • The Forum Moderator

    Join us again next week on Tuesday, December 12 when we will discuss Discrimination in America: Native American Experiences from noon-1pm ET. Check ForumHSPH.org for the link.

  • The Forum Moderator

    Question sent in by email:
    Medical devices pose a major risk where health data can be compromised. What are some of the top medical devices that pose problems? We’ve hear a lot about connected pacemakers and insulin pumps, for example, but what others should we know about? What are your suggestions for avoiding risks in this area?

  • The Forum Moderator

    Question sent in by email:
    How does big health data factor into clinical trials? I’m thinking especially about genetic data, too, and how it might be transformative if aggregated as data sets for cancer trials, for example.

  • The Forum Moderator

    Question sent in by email:
    How can individuals see information that has been gathered about them by health companies that analyze health care claims? This type of information is not protected under HIPPA, I don’t believe, as it’s not gathered by health care providers but rather third parties. I read an article about this that said it’s a real risk and the information can be made available to employers, for example, and used in situations like hiring and firing? Is that true?

  • The Forum Moderator

    Question sent in by email:
    Can you talk a bit more about using big data to predict the trajectory of disease outbreaks and potential epidemics? Where is this data culled from, beyond medical records, social media and that sort of thing? And is there is move on to do this more aggressively in lower-resourced countries where traditional surveillance is already such a challenge?

  • The Forum Moderator

    Question sent in by email:
    I think that all this health technology and data is changing the patient/doctor relationship significantly. Patients are more informed about their health issues now because they have much access to information from the internet and even their own electronic medical records. And they also actively add to their own health data by using smartphones and that sort of thing. Do you think this is improving the relationship between patients and physicians — even if there also seems to be less time spent in person between patients and doctors and more reliance on technology for communicating, overall?

  • The Forum Moderator

    Question sent in by email:
    Doctors seem burdened by all the documentation they need to do now because of electronic medical records, and you’ve also talked about the overabundance of data they need to process, in general. How can doctors prioritize handling all this information that’s coming at them to use it most advantageously? I worry that too much information can actually cloud a doctor’s independent judgment, for example

  • The Forum Moderator

    Question sent in by email:
    How does a health data handler learn about and begin to implement new security and privacy techniques?

  • The Forum Moderator

    Question sent in by email:
    Health Disparities plays such a significant role in face-to-face medical care for much of our constituents already and we see the negative outcomes data for these patients.
    What are your thoughts regarding issues of bias or lack of awareness and inclusion in “Big Data” due to narrow, biased, data programming, data sets, and algorithm design and on the future of disparities in the new world of Big Data medicine?

  • The Forum Moderator

    Question sent in via social media:
    Blockchain technologies are now disrupting healthcare markets. Anything hot these days to look for on Electronic Health Records and/or insurance/payment markets with blockchain technologies? How specifically should blockchain be used on data storage: i.e., decentralized or centralized data storage solutions? How is blockchain connects to FHIR (Fast Healthcare Interoperability Resources)?

  • The Forum Moderator

    Question sent in via social media:
    With CVS’ proposed $69 billion buy of Aetna, does this double down on
    patients’ erroneous expectations that for every disease there is a drug?
    is healthcare entering a new era where attention to **social determinants** of
    disease, the academic underpinnings, is being sidelined by data for profits with the potentially unintended population outcome of ill-health?

  • The Forum Moderator

    Question sent in via social media:
    Will Dr. Samal be able to share more data on her recent paper and application she mentioned? Maybe a link to the paper or to GitHub? Thanks

  • The Forum Moderator

    Question sent in via social media:
    China is going through a major healthcare reform just as we are going through a big leap-forward both in economy and in big data. There hasn’t been an exact counterpart to HIPPA yet. What would the panelists recommend as China starts to build something similar?